• medical treatments using Bisphosphonates
• advances in rodding surgery
• greater understanding of the benefits of physical therapy
• understanding how to properly cast or splint OI bones when they fracture. 

Unless a physician or orthopedic surgeon has taken a particular interest in Osteogenesis Imperfecta it is very unlikely that he or she is up to date on current treatment methods for a child with OI. Some of the new methods for treating OI children result in dramatic improvement in the childs quality of life when started very young.  It is a terrible injustice when a family has trusted a doctors care only to learn that he or she was misinformed and they have wasted precious months or years in their childs life. Most children with OI will need a local pediatrician and orthopedic surgeon who they can turn to for immediate care. Parents need to be proactive and educated about OI. They need to make sure their doctors are informed and open to working as a team with the child's parent in making healthcare decisions.

Many parents choose to travel to see one of these OI specialists to better understand the way OI affects their child and to make sure they are making the best decisions for treatment. These specialists offer OI Clinics.  A child with OI may need to see a number of doctors or specialists (pediatrician, orthopedic surgeon, dentist, audiologist, radiologist, physical therapist, occupational therapist, nutritionist, etc...) At the Clinics these doctors are brought together on a specific date and patients rotate through and see all the doctors they have need to see. The doctors, in turn, are able to discuss and work together to better serve the childs needs. The parents receive a thorough evaluation of their childs condition and suggestions to help their child reach their full potential

The following doctors and hospitals offer extremely comprehensive OI Clinics for newborns and children. These specialists have incredible knowledge in treating children with OI. They will have the most current treatment options available. Many are willing to discuss your child's concerns by phone or email.