My OI Friends

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The Official Alexi Soraya Site

Osteogenesis Imperfecta is such a rare disorder that before the internet I probably would never have met another person with OI but because of the yahoo group OI PARENTS my mom has met some great OI families and I get lots of friends.



ARDEN

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Alexi and Arden enjoying the Zoo in July 2003.....both about 12 months

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MEGHAN

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CAYLEY AND HANNAH

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Omaha is a great meeting place for us OI families.   Cayley is 6 years old and Type IV and is one of the original PAM infants.  Hannah is 2 years old and getting stronger everyday after starting PAM late(13 months).


KAYTE

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Kayte is 4 years old and has Type III OI. She was born with 38 fractures and started PAM at 2 weeks old.   Kayte runs and jumps and can do a  front flip into the pool to her mother and Alexi's mom distress.

HALLE

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Alexi (age 2.9 yrs) with Halle(age 2.5 yrs) in Annapolis MD get together.

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Alexi and Avery with their new friend Thomas in Florida June 2005
Thomas is Type III by birth history but runs at the speed of lightning and has not fractured in 4 years.